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Autism PINS (Parent Information Needs Survey)

This 2015 internet-based survey of 935 parents of children and adults on the autism spectrum in North Carolina examined parents’ information needs, information seeking habits, positive and negative information seeking experiences, and how and where they chose to look for information related to their children.

Publications

  • Gibson, A. N., & Hanson-Baldauf, D. (in press). Beyond Sensory Story Time: An Intersectional Analysis of Information Seeking Among Parents of Autistic Individuals. Library Trends. [PDF]
  • Gibson, A. N., Kaplan, S., & Vardell, E. (2017). A Survey of Information Source Preferences of Parents of Individuals with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 1-16. [PDF]

Infographics, Tables, and Media

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Four things that frustrate North Carolina parents: Bad science and misinformation; limited rural information and services; limited adult information and services; and limited school information and services.
Parent Needs
Percentage of Parents Seeking by Source and Child Age graph
Local Sources by Topic
Significant differences by education for Where do you look for information about the following topics related to your child?
Significant differences by race for Where do you look for information about the following topics related to your child?
Community Engaged Disability Informatics: Connecting Carolina's Communities with Information
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